Saturday, May 23, 2009

We brought Hunter home yesterday. But, had to turn back around. They did rule Hunter as having a viral infection. The pain was still a mystery until we got home. We noticed that his pajamas was soaked and had stomach acid all over them and him. His G-Tube had busted apart in his stomach. He had to have emergency surgery last night at 2:30 AM to repair. His surgery went fine and he is recovering. They said that he might be released today. But, the details are still sketchy. During the surgery, they took a scope down into his stomach. They saw that his stomach was highly inflamed from the G-Tube malfunction. So, he might have to be in the hospital for a day or two longer. They have to make sure that he can tolerate his feeds through his G-Tube. On the good side, he woke up this morning with no fever. And, we are hoping he will be breaking that soon. The inflammation of his stomach and the G-Tube breaking apart would've been the cause for all his pain. They said it would hurt a great deal. The poor baby! Thanks for all your prayers and support.

Thursday, May 21, 2009

Hunter got sick really fast yesterday. He was becoming more agitated and was crying out in pain. We brought him here to U of M and spent the night in the ER. He was admitted because they couldn't figure out what was going on. As they started to eliminate things, they were noticing that Hunter's pain was increasing and his neck and back was growing stiff. Meningitis was a red flag for them and they decided to do a spinal tap. They were almost sure it was meningitis. This had me freaked out. Fortunately, the results (cultures) were negative. Now, we are back to square one and still can't figure out what's causing so much pain and fever. I have a viral infection right now. I went to the doctor's because I had a sore throat and was achy! We just had a discussion with the doctor's here at U of M about Hunter. They are now leaning towards him having some silly virus, like me. Because he is a former micro preemie, his viruses may hit him a little harder than the normal person. So, they are going to continue to observe him and treat him for his fever. Thankfully, his influenza and RSV tests have also come back negative. Hopefully, he will be discharged soon. I am sick and tired of hospitals. They are taking really good care of him here though.

Friday, May 1, 2009

Hunter has been showing signs of improvement following his G tube surgery. Yesterday, I really started to notice it. I did not have to give him any Tynelol with Codeine. I can say that watching as your child suffer is one of the worst feelings in the world. Especially, knowing you can't take the pain away.



We still have Hunter on a continous feeding pump. The pump runs 24 hours a day and pumps food into his stomach at a slow rate. We have to set it at a slow rate and build up the amount as Hunter tolerates it. We are working on increasing the amount of formula he gets over a short period of time. This means that by increasing the amount he gets, he wouldn't need the pump so much. He would need the pump at night when he sleeps. And, 1 hour times 4 times a day. After he can tolerate that, we can start our old method of feeding him. This means that he would be on the pump at night. During the day, he could be gravity fed which only takes about 20 minutes. I know this is so confusing. But, we got it! That's what counts, right?