Wednesday, August 19, 2009

This will be a quick journal entry, but something that I wanted to make note of...

Hunter said "momma" for the first time tonight!

Sunday, August 9, 2009

I've been pretty lazy about writing in the journal. I think that summer has occupied my time in other ways.

Hunter has been doing better. It seems that since they have increased his Viagra dosage for his heart, he slowly started to improve. He is off oxygen again during the day, although he still needs it at night. I will wait until this next week, when he sees his pediatrician, and talk to him about what he feels about doing a sleep study on Hunter and his oxygen requirements. Although, I know this will probably be in the hands of his Pulmonary Doctor.

They switched Hunter from his Neosure formula to a Nutren Jr. Hunter still has his oral aversion. I wish that I could say that it has gotten better. But, is isn't and he is fed through his G-tube. Although, this sounds awful, I'm so thankful they he has the G-tube. It has kept him alive and growing well. He has gained 3 pounds since May. This is pretty impressive.

We are still working on his developmental delays. Hunter still has not mastered how to crawl and sitting up is still sketchy. He can sit up, but not for long. It is a work in progress. But, he has an excellent Physical Therapist, who is diligently working with him to get him where he needs to be on a development scale.

It has been a struggle. I will never, ever say this has been easy. But, it has been so worth it.