Monday, November 24, 2008

Hunter is weighing in at 12 pounds 13 ounces and he is solid.

He had his lung appointment today. His lungs are doing a lot better. I was hoping to be oxygen free by Christmas. Although, the lung doctor feels that his lungs are doing better. The oxygen is also helping Hunter's heart condition. Hunter's next appointment with the cardiologist isn't until February. If the heart doctor feels that his heart condition has improved enough to be off oxygen, the lungs will not hold him up anymore.

The cardiologist already felt that his heart condition, Pulmonary Hypertension, is secondary to his Chronic Lung Disease. Hopefully, since his lung disease is doing better – so will his heart. I have already noticed that his heart rate isn’t so high. In addition, his blood pressure has been doing better. These were all clues that he was having a problem with his heart to begin with.

I am so excited for the holidays this year. I just bought him the cutest Santa outfit for Christmas.

As always, I continue to pray for him. I can’t thank you all enough for all your prayers and support.

With or without the oxygen, he is still my Christmas miracle baby.

Hunter rolls...

Hunter ROLLED OVER for the first time today. It happened around 12:40 PM. He was playing on the floor. I was in the shower. Daddy was eating something for lunch. Dad looked down and saw that Hunter was lying on his belly. We both missed the "actual" roll. But, he did it!!!

Tuesday, November 4, 2008

We'll lets see...

As we were placing Hunter's feeding tube in place, we removed the nasal cannula from his nose. Therefore, Hunter was not receiving oxygen. Hunters oxygen saturation stayed at 98 % for 15 minutes. This is so awesome!



Some challenges ahead for Hunter is his feeding tube and getting that removed. Hunter is still having a problem with taking in his entire feed. He gets so exhausted and falls asleep before he can finish. This is why the feeding tube is still in place. His inability to finish his full feeds is due to his lungs and the work it takes to take food from a bottle.

Hunter is working with an Occupational Therapist at U of M. We have taken his feeding times to every four hours and slowly feeding him a large bolus at night over an eight hour period.

His Pulmonologist called today. They are switching his formula from Neosure 22 cal to Elecare 22 cal. This is easier on the digestive system. In a couple weeks, they will try Elecare at 24 calorie to see if he can tolerate this.

Hunter's First Halloween

Hunter was dressed as a fireman for his First Halloween. His delicate health forced him to remain inside, but he did a wonderful job handing out candy.






Hunter's First Halloween Pictures: