Tuesday, September 30, 2008

All is still quiet and mellow this way. We have noticed that Hunter has been doing a couple things that get us parents a little excited.

First, he is reaching for things to swat at them - such as toys that dangle in front of his face or musical stuff.

Second, he seems to be holding his head up a lot better.

Third, he is smiling more and more responsive to our voices.

Early on, which is his physical therapy came out today. They are pretty pleased. Developmentally, he is right where he needs to be.

Thursday, September 25, 2008

Hunter is still doing well in his crib at night. He is right at home. But, we have to turn on a fan and face it away from him for the noise. He got so used to the white noise of hospitals. He needs something to block the silence.

They tried to increase his calories to a 24 calorie diet. That didn't work to well for Hunter. He did not tolerate the 24 calorie and we had to go back down to the 22 calorie. Hunter's little kidneys can't process all the fluid that he should be taking. The goal was to reduce the volume of feeds and increase the calories. Since that didn't work, we have to go to plan B. We are back down to 22 calorie on low volume and working our way up. His weight is staying stable.

Other than that, things are pretty mellow and I like for it to stay that way. Tomorrow is my b-day. I have everything I could ever want. I have a beautiful family and my son is home with me.



Thank you to all that made this dream possible for me. Having Hunter home with me is the best present you could've ever given me. A million thank you's could never justify how grateful I am to all the neonatalogists, doctors, nurses, and RT's that made this possible.

Hunter said his first words today. Haha...I'm not sure about that but it sure did sound like he said Uh-Oh. He was making noises. Tim and me were talking to him. All of a sudden, "UH-OH" comes out. It was so cute.

He was also playing on his gym. He almost completely rolled over. He didn't quite make it, but did a really good job at trying. Go Hunter!

I updated Hunter's photos here. Please take a minute to look at him. He keeps growing

Thursday, September 18, 2008

Hunter slept in his crib for the first time last night. Yay! He would not sleep in his crib before now. He would cry and cry. We had a pack and play beside our bed because he threw a fit to be by himself. Last night, he was so content and I thought I would give it a whirl. He did it!

Tuesday, September 16, 2008

Hunter came home today.

He is so content. I love having him home and having him happy!!!

Hunter sits in the Stanley Cup

I am just walking in the door from another long day at U of M.

First off, I like to start with exciting news....Hunter got to meet Chris Draper and sit in the Stanley Cup. That was pretty cool being the Red Wing fanatic that I am...I mean that Hunter is....:-)



Hunter had his second echocardiogram today. He also had an EKG of his heart. The echo didn't show much improvement, but there was a slight improvement from the viagra. I thought he was going to have to stay for awhile. But, the cardiologist discussed his care plan. HE IS BEING DISCHARGED TOMORROW!!! YAY!!! Hunter had to be followed by an expert in Pulmonary Hypertension. His appointment will be in a month from now. They will reassess his heart and see if they need to take more measures to treat him for the Pulmonary Hypertension. They are hoping that with a month of growth and lung development it will make a huge difference with the Pulmonary Hypertension and the pressures on his heart.

If, after a month, he is rechecked and his condition doesn't change they will have to do a cardiac catherization. This procedure requires them to go into his arteries to get an accurate read of the pressures in his heart and lung. He will have to be put to sleep and on a vent for this procedure. This will also determine if they need to add more medication to treat his condition. I will be praying he continues to grow, develop, and outgrow it.

From a lung perspective, they will be following Hunter in the BPD clinic. BPD is the same thing as Chronic Lung Disease. BPD stands for Bronchopulmonary Dysplasia. It's all associated with his extreme prematurity.

Hunter's oxygen needs have to be increased. He needs oxygen for his BPD and Pulmonary Hypertension. But, they don't foresee this lasting longer than one year, possibly less. Again, a crystal ball would really come in handy to answer ALOT of my questions...

Thanks for your prayers.

Sunday, September 14, 2008

I am still here and never had the nervous breakdown that I still think I deserve. :-) No really, I'm okay and was nowhere near a nervous breakdown. Like I said, that would've happened 100 days ago. And, I'm not giving up this fight with Hunter. He has taught me a thing or two about true inner strength. My house is a mess, my laundry is stacked up, and for those that know me the best - you do not believe it. But, yes - everything is just out of order right now. It is awful... Although, it is driving me NUTS! It can wait.

Anyways, moving forward...OH, we are switching our lung doctor and cardiologist team over to U of M. It was a really hard decision to make. After we found out that Hunter had Pulmonary Hypertension, we wanted the lung and heart doctors to be able to work together easier. We love St. Joe's and U of M cannot replace them. Hunter is getting really good care at U of M right now and we found a cardiologist that specializes in Pulmonary Hypertension. Hunter has to be followed up in a developmental clinic because of his prematurity. This is different than his lung and heart doctors. I was pretty firm with U of M that we were going to stay at St. Joe's for the developmental clinic. One of the neonatalogist that saved Hunter's life in the beginning is head of that. I love all of the neonatalogist and would not feel comfortable removing Hunter from the developmental clinic at St. Joe's. St. Joe's still remains a family to me.

We talked to Hunter's lung doctor. We thought he was going to come home today. Then, his heart doctor came in and had a different view. We will have to stay for a couple more days, at the least. They have increased the viagra to a max dosage for Hunter. They did this a couple days ago. They want to repeat his echocardiogram on Monday. Our hopes are that the pressure on the right side of his heart has come down. If that is the case, we can come home. If not, Hunter has to stay. If they send Hunter home with high pressures in the heart, Hunter WILL have heart failure. It would be a matter of time. Although, I want my baby home, I do not want him to have heart failure. I am pretty comfortable with their decision and will stay as long as we need to get him right. If Hunter's pressures have not come down, he will need a cardio catherization down. It sounds like it is a pretty serious procedure. They will have to put him to sleep for the procedure. They go inside and look at how intense the pressure is. They are also looking to see if it is a premature lung structural problem, or a premature blood vessel problem. If it is a premature blood vessel problem, they can add another medication to the viagra to help him. If it is a premature lung structure problem, the treatment is a little more intense. The doctor wasn't going to go there with me yesterday on that. It is one day at a time. We have to get through the echo on Monday...

We bought Hunter his third mobile for this hospital stay. His first mobile, (Dalmatians), stay in his "fire truck" nursery. The second looney toon one - I can't find. Now, he has an adorable rainforest one on his crib. He loves it. I even named all the little animals on it. The gangs all there with him: George (the "curious" money), Kermit (the frog), Sam (the toucan), and Benson (the bubble bee). Maybe, I'm losing my mind ... a little. Hahaha. Insanity can be fun!

So, please pray that Hunter's echo looks good on Monday, the increased dosage of viagra is working, and he can come home. If not, he is there for awhile...at least they are being thorough and not kicking him out the door. Heart failure would be devastating

Friday, September 12, 2008

Today has been a stressful day. Hunter was moved to a different room. He is still on the 6th floor. He is in room 6684. The day started with a family that moved into the room we were in. Apparently every adult in that room was a smoker. The whole entire room was immediately filled up with the smell of smoke. This happened once the adults entered the room. It almost made me gag. And, I'm an ex-smoker. That's how bad it was. Hmmm...let's think about this. My baby came in here for respiratory failure and chronic lung disease. I just couldn't let this go. He's my baby and if I don't stand up for him, no one will. So, I was pretty adamant that we needed to move to a different room. This is how we ended up in this room.

Stressor #2: Hunter's respiratory rate was running higher than normal. His lips were quivering and his arms were shaking. I had to wait an hour or two of wondering what the heck was going on. I was anxious! One and a half hours took forever. They finally think that it is a medication withdraw he received in the PICU. They had to start him back on ativan and have to slowly wean him from that. This is something I thought they did in the PICU. Hmmmm?????...not sure what's going on at this point.

Stressor #3: He has been ordered echocardiograms and ultrasound. We found something that looked like a hernia in his scrotum. This requires an ultrasound to take a look. Echocardiogram -They are still concerned about how hard the heart is working to pump blood through the blood vessels of the lungs. They may have to tweak his dosage.

Stressor #4: Did I mention that I watched as a respiratory therapist wipe his snotty nose on his hand, up his arm; then, reached for my son to give him a breathing treatment. Yep, my son - the one with chronic lung disease that is highly susceptible to viral infections that could put him right back into the PICU with respiratory failure again. I was pretty sarcastic. Funny, a different RT has been working on Hunter since then.

Everything that Hunter should not be exposed to - it has happened on this floor and I am hot! Smokers and snotty noses, I'm not even going to ask..what else? Plus, I'm exhausted. That probably has an impact on my coping methods at this point. Honestly, I'm not having a nervous breakdown. I think if that was going to happen, it would have happened 100 days ago...Hunter and me...we are fighting this together. He's not giving up and neither am I.

Friday, September 12, 2008

Hunter got the official diagnosis today of Pulmonary Hypertension secondary to his Chronic Lung Disease.

A brief explanation of Pulmonary Hypertension is the blood vessels in the lungs clamp shut. This makes the heart work harder.

Hunter's echocardiogram results were that in the heart, the right ventricle was larger than the left. This is bad because the right ventricle is in not supposed to work harder than the left. The right is supposed to be a little more relaxed. Therefore, it gives us the sure diagnosis of Pulmonary Hypertension.

They increased the viagra that Hunter takes for his Pulmonary Hypertension. This was increased yesterday. This is supposed to relax the blood vessels in the lungs so the heart can pump easier. One of two things could happen: 1. The viagra works, they keep him on it and in a year or so when his lungs are better they reassess the situation to see if he still needs it. 2. It doesn't work where they would have to take much scarier measures. This might include Hunter having another stay in the hospital, placing an long term IV (PICC) in his arm and starting him on medication that could only be put through the IV. He would eventually have to come home with an IV.

I am really praying that that the viagra starts doing its job. Hunter's home oxygen will have to be increased to 1 liter, instead of the 1/4 liter. Oxygen has also been proven to help Pulmonary Hypertension. The big hopes are that once Hunter's lungs are bigger and stronger, he will outgrow Pulmonary Hypertension as well as Chronic Lung. It is a serious condition that if left untreated could be fatal. Thankfully, we found it.

Things are constantly changing. They know that he has Pulmonary Hypertension. This is the reason he became so critical so fast. They call it Pulmonary Hypertension crisis. This is the official findings for this hospital stay and the reason he was so critical.

Thursday, September 11, 2008

We are out of the PICU and on a normal care floor. Yay! Hunter is doing great. He is back to his normal awesome self. His voice is a little hoarse from the vent, but that will go away. The vent leaves everyone with a sore throat. I had a sore throat when they had to intubate/extubate me for my surgery.

If you plan on visiting Hunter, he is on the 6th Floor of Mott. He is in Room F6527. If you take Mott's west elevators, it is closer than taking the east. His room is right outside the big family room and nurses station.

We will be here for a minimum of 3-5 more days. They plan on doing a multi channel test to see how severe Hunter's reflux is. They had to take him off the Zantac and wait a couple of days to do this test.

Things are really start to smooth out with Hunter and he is doing so well. He was so swollen before. Now, he looks like my little baby again...acting like him too. :-)

Thanks for the prayers and support.

Wednesday, September 10, 2008

Hunter was turned down to his 1/4 liter oxygen last night. This is where he was at while at home. His respiratory rate and oxygen is great. If he keeps it up throughout the day, they will be moving him out of ICU and on to the floor

Tuesday, September 9, 2008

Bragging Rights....This goes down as Hunter's fifth time of self extubating. haha. They were supposed to extubate him at noon. Hunter heard this information. The nurse, Hunter, and me were sitting in the room at 12:15 waiting for the doctor's final okay ... well, what came next...Hunter turned his head and pulled the vent out. He only gave them 15 minutes and he took actions into his own hands. So far, things are going good. They started him out at 1 liter and have been able to wean him down to 1/2 liter. Next step ... 1/4 liter, this is where he was at before. I am so excited. He looks so good. He is bright eyed and is being my little bubba again! Yay!!! Keep praying. It usually takes a good 24 hours on nasal cannula to call him safe. But, he is stating nicely right now. I'm all smiles right now, as you can imagine.

Tuesday, September 9, 2008

Things keep changing here and with Hunter. They put Hunter on Viagra. I got raised eyebrows on that one. Yes, it is true. Initially, Viagra was/is a medication that treats pulmonary hypertension. It got its reputation because it has some "rewarding" side effects. After the side effects were made known, they started to market Viagra for "pleasure" rather than pulmonary hypertension.

They are treating Hunter for Pulmonary Hypertension. They believe that his blood is shunting through his lungs and causes his destats. As we all know and I have wrote over and over again, Hunter had Chronic Lung Disease (BPD). BPD will get better as he gets bigger and hopefully will his Pulmonary Hypertension.

They started Hunter on two different diuretics. They did this because fluid builds up on the lungs of these micro preemies. Again, it's a BPD thing. The diuretics will keep him breathing easier by removing the fluid from his lungs, even when he comes home. I am looking forward to how the three different medications will help him.

I haven't made it up there yet. When I called, the air in the PICU today is light and suggests that Hunter will be extubated today (off the vent). They have not made rounds yet. He had a good night, has done good with his sprints, and his blood gas was great this morning. Hopefully, it is safe to say that my son is out of "respiratory failure" status and on his way up. I think I heard the doctor say "we are out of the woods". But, I can't be sure. We are still going to be at the hospital for awhile. They want to make sure that when he extubates he is stable. They will have to wean his cannula air pressure down to 1/4 liter, make sure he is stable there, and they have tests and sleep studies they want to do before he comes home.

I have to remind myself that there is no such thing as a crystal ball. Majority of my questions revolve around that damn crystal ball theory. The doctor "predicts" that he will still need to be in the PICU for a couple days. He will then be transferred to the floor and be monitored by a specialist. We have to stay on the floor for a couple weeks. Ugh! Hopefully, we can make it out by 9/26 xxx crossing my fingers xxx

As most of you know, I'm an only child - but to my Sisters (you know who you are), my FRIENDS, and family - THANK YOU. I lay in bed last night thinking about myself and how tired I was (emotionally and physically) and thought shame on me. I feel worn out. What about Hunter? The poor guy has had breathing tubes stuffed down his throat how many times, people poking him, IV's, PICC lines, blood pressure cuffs, constant monitoring with patches he is allergic too, wires and tubes everywhere, different medications, difficulty breathing, awful eye exams, just messed with from head to toe for five months. I thought how unnatural this is. But, He lays there and continues to fight. What a trooper he is. Once again, he amazes me. I don't know how he has done it. I just can't wait for him to get better and stronger. It kills me to see him go through so much.

Thanks for your prayers and support!

Sunday, September 7, 2008

As it stands right now, the vent settings are as low as they can be without extubating him. Hopefully, if nothing changes, they are going to try sprints tonight. I know, I know..what the hell am I talking about? They are going to make him get up and sprint up and down the hall to see how well his lungs can handle the exercise. Okay, I'm not funny whatsoever. But, it was worth a try. Sprints are when they keep him intubated, but Hunter has to initiate his own breath. It gives the medical team a good idea how he will do when they extubate him. It could be as early as tomorrow. We will know more after Hunter does his sprints! He hates the vent and fights against it. Don't ask me how he fights against it? He's pretty smart and found a way. Please pray that Hunter's respiratory system is better and he is able to initiate his own breathing again so they can extubate him.

Although they are talking about extubating him, we will still be here for awhile. It all depends on Hunter and how fast he can get back to the nasal cannula 1/4 liter. Hopefully, we will be home by my birthday (9/26) All I want for my b-day is him home with me, cuddling him all day long

Saturday, September 6, 2008

Hunter seems to be doing better. Despite him still being heavily sedated and on a vent...a mother knows.

He is not destating so badly and they have been able to wean his settings on the vent.

Saturday, September 6, 2008

Hunter is still on the vent, but is waking up more. They have been able to wean the settings on the vent. They have not been able to wean the sedation yet. This is scary because the sedation doesn't seem to bother him too much. Perhaps, tolerant? It's nice to see his big brown eyes looking around. He isn't so puffy anymore and is looking more and more like Hunter. His destats aren't so frequent, but they still happen. When they happen, they aren't as severe as before.

Our hopes is that Hunter will come off the vent next week sometime. After he comes off the vent, he will still be in the hospital for awhile. They need to wean his oxygen flow back down to a 1/4 liter oxygen. It will be nice to see that vent gone, gone, gone away!

They are thinking that some odd virus caused this with Hunter. As I wrote a long time ago, the tiniest bug - may not affect you or me - will set him over the edge. So, we know that when Hunter gets sick, it sends him into respiratory failure. That is really scary to think about. The winter is right around the corner. I ramble when I'm tired. Here I go rambling...

Friday, September 5, 2008

As you all know, Hunter just spent 119 days in the NICU. My strength and energy was spent when he was discharged from the hospital. It was 119 days of worry, frustration, and scary times. It was putting my whole faith in God and knowing that he would pull us through it. It was knowing that my system could not handle one more day in the hospital.

On July 28th, Hunter came home. What a beautiful day that was. Although, I was never really able to take a good, deep breath, he was home with me. I got to cuddle him, care for him, and love him 24 hours a day. I didn't have to leave him at night. I didn't have to spend my nights worrying what was happening with him. All I had to do was check on him to see him peacefully sleeping.

I had one month of bliss with my son. His chronic lung issues make him a delicate infant. I had to watch him closely. I did everything right or so I thought. I didn't take him into stores and around a lot of people. I washed my hands constantly. I sterilized everything. He remained on that teeter tater and nothing could be unbalanced.

On August 31st, Hunter was rushed to the hospital with respiratory distress. We had to call 911 because Hunter was blue. Initially, it was respiratory distress but quickly turned to respiratory failure. Now, heavily sedated, back on the vent, my baby lies there paralyzed from the medication. He is back in intensive care, but not around the nurses and doctors I trust so much at St. Joes. He had to be transferred to the University of Michigan PICU. Hunter's condition was too serious for St. Joe's. Hunter can't be admitted back in the NICU. St. Joe's does not have a PICU. Not only is he in critical condition, I have to learn to trust a whole group of people that aren't the people I grown to love and trust from before. It's not the same group of people that had a heart for Hunter. The NICU loved and worked so hard for Hunter. He was engrained in there hearts and still is. Hunter wasn't a job to the nurses, doctor's, and respiratory therapist. He was a part of them. He was a piece of there heart. Because of that, I knew he was in good hands. They cared about him. No other hospital. No other intensive care unit could have that same bond with him. No other place was there from the beginning. No other hospital could replace St. Joes. I walked in to so much support from them. I know they love Hunter. Not only do the nurses, doctors, and RT's deserve the credit...No other Chaplain could be Jean. And, no other social worker can I trust but Margy and Lily. How can I move past this? The answer is: I can't. No one can replace the care Hunter and our entire family got at St. Joe's. I can't have Sharon, the crazy respiratory therapist, who in all aspects is not crazy at all - but very intelligent and taught me so much about life through her own experiences. Or, Becky - gosh, what can I say about Becky? The best nurse I ever met, perhaps. Or, Dr. Weiner...the doctor I looked up at when I was in labor and being wheeled into the c-section room pleading with him to save my baby. And, saving my baby ... he did. But, it isn't just the three people I mentioned. It is the entire team - who I could write a novel about - all good things - about how each one of them loved Hunter, loved our family. It really wasn't a job to them. It was more. We were there family. No other hospital could replace that.

So, here I am wondering...where will I find the strength to get through this, specially without my family of doctors, nurses, RTs, social workers, and chaplains? I had to put away his pictures of his critical days before this happened. I couldn't look at them. Now, we are thrushed back into the situation we fought so hard for in the beginning.


I set here and right this blog. Why? I am trying to figure out how I am going to get through another day. How am I going to drive to the hospital? How am I going to park? How am I going to sit there and wonder what the future holds for my son? The fear of losing a child is to intense for me to write about, but that intensity I live with everyday. In the meantime, I listen to the hum of the ventilator as it is engrained into my memory, traumatizes every thing I see and hear. Where do I find the strength to go through this?

Where do I find the strength to make sense of this all? The doctors can't find a reason why it happened. So, I put the blame on me. I was the one taking care of him.

I pray ... God give me strength. This body is worn. This mind is worn. This soul is worn. I love my child more than I love anything in this world. I love my child and put my child before anything, including me. Why him? Take me...

Please pray for Hunter once again. He needs your prayers.

Wednesday, September 3, 2008

Pulmonary Hypertension with respiratory failure is what they're calling it.

Respiratory failure is exactly what it sounds like. It is when your respiratory system fails to work.

It can be reversible. And, that is the ray of hope I grab on too. It can also not be.

He has made little improvements today, which gives me an additional ray or two. He was on a machine that delivers nitrous oxide to him. Nitrous oxide opens up his airways and allows the blood to move more freely through his lungs. When he first arrived to the PICU, they had the machine set at a level of 10. They tried to wean him to 5 yesterday. That did not work. Today, he is down to 1 and still weaning....

They haven't been able to wean him from the vent today. When he arrived in the PICU, he had the highest vent settings and the oscillator was the next step. He is down to modest settings, which occurred yesterday. He has remained there. Since they are weaning the nitrous oxide, they don’t want to touch the vent settings. Hunter doesn’t like a lot of changes all at one time. Patience can be the key.

They did a spinal tap on him today. The preliminary results are negative for meningitis. It is something they had to rule out. Viral infection has been negative. Bacterial infection has been negative. They are not sure what sent him in this downward spiral.

It's official. Hunter was not having seizures. They're not sure what caused his seizure like activity. The results are negative and his cat scan shows a normal brain with nothing remarkable to report. They will be following up with a MRI. This will come later.

Before Hunter went into the hospital, we thought he was having trouble with reflux. This is very common for a micro preemie. Before Hunter leaves, they will be doing a sleep study on him to figure out the severity of his reflux. They need to be able to treat it accordingly. Reflux can lead to pneumonia in these little guys.

I think I covered all my bases on Hunter for the time being. I am tuckered out. My b-day is at the end of the month. Let's pray he is out by then...All I want to do is spend my b-day cuddling him.

Wednesday, September 3, 2008

Hunter's pediatrician came to visit last night. He read the notes and sat down with me to have a talk.

The biggest question is : what is causing all of this? We need to know how to fix it.

Virus Tests : Negative
Bacterial Test : Negative

I got a name...pulmonary hypertension. Pulmonary hypertension is when there is too much pressure in one lung and not enough in the other. Because Hunter's lungs are so premature, the heart has to work harder to pump blood to his lungs. Therefore, fluids starts to build up in his lungs, as does the pressure. This creates a critical situation for Hunter. Pulmonary hypertension can happen at anytime. The pediatrician referred to his situation as walking along the edge of a cliff. When pulmonary hypertension happens, it is that step off the cliff.

Hunter is remaining the same. He might have made a slight improvement, but last night started to have difficulty maintaining his blood pressure again. We are praying that today is better! He is still a very sick little baby.

Thank you for your prayers...

Tuesday, September 2, 2008

Hunter is still in the PICU at U of M. He may be there for awhile.



Yesterday, his airways clamped shut and it appeared that he had a seizure. We are still waiting on the results from neurology who was monitoring him at the time. Hunter has never had problems with seizures. So, the whole episode was scary as well as his airways clamping shut. When your airways clamp shut, it clamps shut on the ventilator as well. This means that no air can get down him. They had to quickly give him a muscle relaxer and so forth..I had to step out of the room at this point. So, I can't tell you the whole story.

He is not putting out good urine output, his body is swelling, he is on the highest settings that the ventilator has, next step oscillator, and they are having difficulty with his blood pressure...ugh!

At this point, no one knows what is making him this sick. The situation is not good. He is not good. I am devastated, as you can imagine.

Here I go with how I am doing...I am holding up, but that is all I can say I'm doing. I am back to being a robot. Last night, was really hard to leave him. I came home and felt the need to be by him. So, I grabbed my pillow and blanket, the last blanket Hunter was using before he left for the hospital, slept in his nursery, crying myself to sleep.

The last couple days have been extremely rough. They have him completely out and paralyzed. I miss my lil man. I miss him and his cute reactions when he hears my voice. I even miss his cry. This is so hard. I can't even begin to explain.

I have to take my shower so I can head up there.

Sunday, August 31, 2008

It wasn't long. Hunter had to be admitted into the hospital. This stay is a more severe than the previous stay.

Hunter was having problems with reflux last week. He appeared very uncomfortable. The doctor called him in medicine and I was hoping that would start helping him. Hunter's behavior and work of breathing gradually got worse.

I continued to watch him over the course of two days. Yesterday, I made the decision. We couldn't wait any longer. He was a nasty color in his face and we had to keep cranking up his oxygen to keep his color.

After we got him in the car and drove away, Tim noticed that despite Hunter being on significantly higher oxygen settings, he was still turning blue. We knew that we could not make it to St. Joe's. We pulled into Dundee Fire Department and called 911. Hunter was transported to St. Joe's.

After arriving at St. Joes, he was in worse shape that we could have ever imagined. It was determined that Hunter needed to be in an Intensive Care Unit. They transferred him to U of M.

Once we arrived at U of M, they started there tests, hooked up a vent (sigh), and began working on my little man. He was admitted into the PICU. We have no clear answers why he has taken such a turn for the worse.

In the middle of the night, Hunter started having seizure activity. They brought in the team of neurologist, and have him hooked up to see if it is seizures. I still don't have an answer for this yet either.

Please pray for Hunter.